Why you need to do your research

20 Dec

Besides the brief moment where I broke down in tears at the sound of a newborn crying for milk, my appointment today was really positive.  Not only did she agree to the testing I wanted, she didn’t have to!  It, um, turns out that the list of tests that I planned on requesting, I’ve already had!  (Turns out you don’t always have to see a fertility specialist, and some ob/gyns – mine specifically – will be just as thorough.  Yay me!)  The difference is that this time when she explained all of them, I had done my research and knew what each one was.  Back in August I was completely crippled with grief and fighting back my tears while trying to comprehend what she was saying.  It was all a foreign language to me and I had no idea what any of them meant.  Even when the nurse had called me back a month later with the results, she had failed at her job of explaining anything to me.    I also didn’t know the information to ask the correct questions, and she took advantage of that.  Her cheery, “all the tests came back fine!” did what it was supposed to: throw me off so she could get back to her list of calls she had to make.  This is a huge reason why I had no idea what any of the tests were that had been done.  (I did tell my doctor that I felt this way about her nurse, and she didn’t seem all that surprised and apologized.)  Anyway, all of the tests I have been researching and wanted – antiphospholipid antibody syndrome, RH factor, thyroid, Factor V Leiden – all came back normal.  I can’t tell you what a relief this is.  Before, it wasn’t the relief it should have been because I was clueless.  4 months ago, all the scientific terms went over my head and I was helplessly lost in my sadness; but today I felt armed with the knowledge I need to fight this.  We’re going to test the Factor V Leiden one more time just to be sure and my Beta 2 Glycoprotein I Igm* because it was a little elevated (I still need to read more about this, I’m not sure what it is and she wasn’t certain either).  So please, if you’ve found this site having just gone through a miscarriage (I’m so sorry), do your research before you hear the results of your tests so you can ask the right questions and know if your doctor is being thorough.  Maybe if I had done the research earlier I would have been able to start fighting this fear earlier.  After today, I feel a little bit more confident.  I’m not all the way there yet, and maybe I never will be, but it’s something in the right direction.

Also?  I already liked my doctor, but the fact that she took the time to go over these with me one more time and not act put out, makes me like her even more.

——

* In doing some quick searches, it appears that it’s connected to antiphospholipid antibody syndrome (see the second paragraph) and thrombosis.  And in this abstract that I found, it says that it can be connected to pregnancy-induced hypertension (PIH) or preeclampsia.  But if a woman tests negative for the lupis anticoagulant (which I did), then it does not increase the risk of PIH or preeclampsia.  Not that I got far enough to experience either of the two, but it’s still something I should take note of.  Wow.  I almost feel like this might be a huge clue into why I miscarry.  I’ll be interested to see the results of the second set of tests are and what my doctor finds out about this.

I’m pretty sure none of the books I’ve read have mentioned beta-2 glycoprotein I.  Have any of you heard of this or have any of your RE’s talked to you about it?

Here’s one more article that refers to it.

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